Tag Archives: Trust

Of triggers, traumas and taking control

There’s been a lot of talk on the interwebs of late about trigger warnings. What are they, who needs them, should we have them everywhere or nowhere, what good do they do? I’m not mad keen on them, myself – I can see a purpose in the basic sex/violence warnings you get on DVD boxes, since those are things that bother many people for many reasons, but I don’t see how they can usefully extend beyond these broad categories.

 

The thing about being triggered is that it’s completely different to being made to feel a bit uncomfortable. Triggers are part of living with PTSD. People who are triggered experience extreme, excessive reactions to stimuli – things like flashbacks, uncontrollable shaking, spontaneous nausea/vomiting, the fight/flight/freeze response. It can change your mood for days, give you nightmares, kill your appetite, prevent you from sleeping, cause dissociative episodes… Of course, not everybody experiences all of these things, but the point is that there’s a lot more to it than just not liking to see or hear something (and the people who co-opt the term “triggering” as a means of censoring and controlling those around them do none of us any favours).

 

Having dealt with PTSD for several years now, I’m no stranger to triggering and know very well the difference between something that triggers me and something that just upsets me. If I’m reading a book or watching a film or play and someone loses their loved ones through death or abandonment, it will upset me (if it’s done believably, otherwise it’ll just piss me off). I will probably cry. It probably won’t make me want to stop watching or reading, unless it’s really close to home. Breaking Bad came close once or twice, because Walter White strongly reminds me of my dad in terms of looks, temperament and physicality, and watching the character going through cancer treatment in the first season was tough. It made me very sad, and I thought about my dad a lot while I was watching it and missed him badly. It pained me that I’ll never get to show him Breaking Bad and tease him about the resemblance. But it didn’t trigger me. It caused me to have a perfectly normal response to being reminded of someone I still miss.

 

So what does trigger me? Well, the one I encounter most often is car crash noises. Some shows and films use very realistic crash sounds, and I find those hard to handle. I can usually rely on structure and lead-up to see it coming, in which case I’ll get ready and make sure I’ve covered my ears and am not looking at the screen when it happens. The trouble is that sometimes it comes out of nowhere, so there’s no action I can take. Last year I was at a book launch and part of the way through the reading, CRASH, sound effect out of nowhere! There hadn’t been any other sound effects, nothing to make me think that this might happen, so I was completely unprepared. I nearly leapt out of my seat, then sat there for a while twitching and shaking, trying not to scream or cry. I had nightmares that night. But at least it wasn’t as bad as seeing The Avengers: Age of Ultron. I remember almost nothing about that film except that there was a sequence that was just one crash after another, and by the time it was done I was curled up in a ball on the floor with tears streaming down my face.

 

Now, car crashes are pretty common so I suppose one could argue that anything involving a representation of a crash should bear a warning. Personally, I don’t agree. They are common occurrences, and most people are fine a short while afterward. They process the shock and fright, they recover, they don’t shake and cry whenever they hear the noise. I recovered just fine from the first crash I was in, when I was a child. I appeared to be fine after the pile-up in 2005. It wasn’t until the black ice incident in 2008 that I started experiencing flashbacks and other trauma symptoms. For a while I found it very difficult to be in a car at all, but EMDR helped me to get things under control to the point where I can drive and be a passenger. It’s just the noises that still trouble me, but that’s my damage and I don’t think it should be necessary to undermine a dramatic device to accommodate it.

 

Also, not all triggers are as obvious as that. The other one that affects me is the smell of lavender. While car crashes are commonly considered traumatic events with negative associations, most people’s associations with lavender are very positive. It’s a very popular fragrance for bath products or anything laundry-related, and it’s one of the most common oils used in massage or any kind of relaxation treatment. It’s remarkably difficult to avoid, but for me it’s tied in with memories of things that happened while my mum was dying, things people did that I still can’t talk about, even in therapy, because to process those things is too close to forgiving them and there will be no forgiveness here.

 

I control my environment where I can. I’ve got used to checking laundry products and toiletries to make sure I don’t inadvertently pick up something lavender-scented. If I book a massage I request that no lavender be used in my treatment and offer to bring my own geranium oil instead. But there’s nothing I can do to control the outside world, where lots of people like the scent and I can smell it on them. Nor would I want to restrict their right to enjoy the fragrance if they like.

 

A few years ago my husband and I went to see Puppet State Theatre’s wonderful show The Man Who Planted Trees. At one point there is a description of lavender fields, and by means of a beautifully simple effect they waft the scent out over the audience. I saw it coming, only just, and scrambled for the bottle of Olbas Oil I usually keep in my handbag to drown out any other smells. It broke my heart a bit that I couldn’t enjoy that part of the show the way it was intended (though I certainly appreciated it objectively and could see that it was lovely for everyone else).

 

The experience I had at that show always pops up in my mind when discussing trigger warnings. I don’t think it would be reasonable for me to expect Puppet State to have anticipated my reaction. How could they? It would be equally possible that someone might have PTSD responses linked to a particular quality of light, or the type of shirt one of the actors was wearing, or to an uncommon phrase that might have cropped up in the script. If triggers are very specific and personal, any aspect of a show (or film, or book, or everyday experience) might be someone’s trigger – so in order to provide total protection, it would be necessary to list every single component of the production and every word in the script, and at that point haven’t you just experienced the thing anyway?

 

My preferred option is to take responsibility for my own traumas and deal with them myself. I try to anticipate the car crashes in TV and film, and I carry my Olbas Oil to overpower unexpected lavender. And, increasingly, I try to get the better of the triggers. I’m on the waiting list for further EMDR to deal with the car crash stuff, and while I’m getting support from my current therapist I am training myself to be able to tolerate lavender without having a visceral response to it.

 

It’s been a long process, beginning with using CBT to control myself when I encounter the fragrance. Every time I would try to push myself a little bit longer before I blocked the smell out. I’d control my breathing, remind myself that the nausea was without cause, dissect the intrusive thoughts, try not to let myself shake. Later I acquired a bottle of lavender oil and started training myself to handle the scent at its strongest. Most recently I scented my bath with it so that the smell of lavender went wherever I went, and noted how it affected me. I’m almost entirely in control of it now. I’ve overcome the shaking, the nausea, the hyperventilation. I’m aware that I still experience heightened alertness and am quite jumpy when I can smell it. But it’s so much better than it was, and I’m still working on it. Whether I’ll make my peace with lavender to the point where I can have it used in massage I don’t know, but at least I’ve made it to this stage. I’m getting there.

 

Of course, overcoming triggers through exposure isn’t the right move for everyone, so I’m not suggesting that anyone who manages PTSD and may be reading this ought to do the same. It’s taken me a long time and a lot of mis-steps along the way. But I’m glad I’m doing it. I may not have dealt with the trauma that underpins the trigger, but I’ve managed to detach the scent from the experience and will, in time, reclaim it. Whether that’s healthy or not is up for debate, but I don’t know if I ever can have a healthy relationship with those experiences or how long and arduous the journey to get to that point would be. The important thing, as far as I’m concerned, is to deactivate the triggers so that I can deal with the trauma or not, in my own good time.

 

Do I have a conclusion? Not really, sorry. I can’t tell you whether trigger warnings should exist, I can only tell you that I can’t imagine they’d be helpful in my particular case because I’d need to know the thing I’m watching/reading thoroughly in order to know whether it would be triggering. But hopefully this post explains a bit about what it feels like when it happens, what I’ve been able to do to reclaim control and why it’s complex.

 

Enough for now. Whenever I write mental health posts I reach the point where I can’t keep writing long before I reach any proper conclusion. The urge to delete the whole thing kicks in. So I’m going to post and go and work on something else before that urge wins.


A Provocation for the Declaration Festival

Tonight (technically last night, since it’s about 1am) I gave a provocation at the Declaration Festival. It was for the closing event, responding to Article 24 of the Universal Declaration of Human Rights (the right to rest and leisure). I was delighted to be part of it, particularly to be in the company of Jenny Lindsay and Harry Giles and their excellent, deeply personal responses to the topic. 

My own response was likewise personal. Unsurprisingly, I came at it from the mental health angle. This is the text…

 

Hi. I’m Jen. You might already know that. I’m never sure how much you know.

 

Thanks for coming. Not that you had a choice, but still… thank you.

 

I hope you like the weather. I chose it specially. I thought it would be a good introduction to my mood, you know? A bit grey. Frosty. Kind of a foreshadowing thing.

 

It’s really nice to see everyone here today. What’s even nicer is that I’m pretty sure that most of you are real. You look real.

 

Except you. You, not so much. I’m not sure whether I’m hallucinating you or not, and it’s not really polite for me to ask complete strangers whether they’re real or not. Normally I wouldn’t call attention to you, just in case you are a hallucination and everyone thinks I’m crazy for interacting with someone who isn’t there. I’d wait until someone else has demonstrated that you’re real to them before I said or did anything involving you. It’s a bit convoluted, I know – the easiest way to establish your reality would be to touch you, but there are two problems with that. First, if you’re not real then this entire room full of people would see me waving my hand through empty air. Second, if you are real then – wait, actually, it’s three problems. Because the second problem would be that I’d just started pawing at a stranger for no apparent reason, and the third would be that while we were in physical contact you might be able to read my thoughts.

 

That’s why I’ll avoid shaking anybody’s hand if I can. You seem like very nice people, and I’ve no doubt your hands are clean and everything, but I’m sure you’ll understand that I don’t really like letting people read my mind until I get to know them a bit better. It makes job interviews and networking sessions a bit of a bitch. Especially when people don’t employ me or don’t reply to me, because then I wonder whether it’s because they saw something in my mind that they didn’t like. I wouldn’t blame them. There’s a lot in there that I don’t like. And here’s an interesting thing – I’ve never succeeded in getting work from someone whose initial greeting involved a kiss on the cheek. I hate cheek-kissing. If touching my hand gives you access to my thoughts, kissing my cheek is like plunging head-first into them. So I’ll keep my distance and run the risk that you’ll think I’m stand-offish. I get that a lot. Stand-offish, reserved, arrogant, bitchy… I just don’t want to let you into my head, that’s all. I’m sorry. It’s not meant as a slight.

 

And now I’m noticing that all of these people are staring at me and that means I’ve been concentrating on you for far too long, trying to figure out whether you’re real. That suggests that you’re not and that I’ve been looking at an empty chair for all this time. So they think I’m weird already. And it’s not that they’re wrong – I’m well aware that normal people don’t have these kind of hallucinations – but I would rather they got to know the professional side of me first. The functioning side. And now they haven’t. Again.

 

The worst thing is that it didn’t have to be this way. I’m in control of this situation, after all. This entire room is part of my story, it’s a construct made in my own mind, so in theory I could turn it into anything I like. Surely, if everything here is the product of my will, I could have manifested a scenario in which I walk into the room and you all automatically think I’m amazing? I could have dreamt up people who have been waiting their whole lives to hear public speaking skills like mine. Why would I imagine a situation where people look at me with long faces, or sneakily check their phones while I’m talking, or think I’m crazy just because I sometimes see things that aren’t there?

 

Oh. I’m sorry. I’m so sorry, you look like you’re having a terrible time. Is it just to do with this? Or is it something bigger? If I’ve imagined you, if I’ve made you exist, have I given you an existence that’s that bad? I’ve done that before, and I feel pretty guilty about it. So if I have… If I have then I’m really sorry, but I don’t know what to do about it. The easiest thing, the usual thing, is for me to steer clear of other people. If I can manage my environment, it’s easier to tell when things are real. It limits the possibilities, but not in a bad way. Just in a way that makes life more manageable. Less exhausting.

 

Because that’s what this is. Exhausting. Every time I’ve been in treatment, when I’ve explained the experience of this lovely combination of schizotypal ideas of reference, magical thinking and good old ADD, that’s what my various therapists and head-shrinkers have said. “That must be exhausting.” Every time. And they’re right.

 

They’re right.

 

This is my punishment, my penance, the price I pay for bringing you into existence and making you miserable. The price of inhibited dopamine uptake, deficient serotonin production, of a genetic quirk that triggered an intermittent madness in me. A mind that never stops tormenting me for the real and imagined things I’ve done. A brain I can’t trust, can’t ever turn my back on. A reality in which I can never, ever… rest.

 

And that’s why I’ll always struggle with Article 24, the Right to Rest and Leisure. For someone like me, with a mind like mine, the management never stops. No amount of recognition or legislation will ever be able to force me to let up on myself. The coping mechanisms have to be constant, otherwise they won’t exist at all.

 

But because of that, I appreciate everything that leaves me with only this battle to fight. The wider the recognition of the right to rest and leisure, the more I feel like I have breathing space. Time to myself, time to hide from the world and focus on quieting the noise in my head. Knowing this to be my right makes me feel better when I see the judgemental faces that my brain conjures up looking at me as if I’m lazy or workshy or seeking attention.

 

Are they judgmental, these faces? Your faces? Are the expressions I see on them real? Are the faces themselves real?

 

I don’t know, and I don’t think I’ll ever have enough energy to reach a conclusive answer.

 

All I know is this.

 

I’m tired.

 

And I need to rest.


After the detour…

Hello, blog. Long time no write.

I’m still here, I’m still alive, and I’ve been meaning to update for just over a year. So why haven’t I?

2014 took its toll. Well, from October 2013 onwards, really. It’s nothing I haven’t mentioned before, just the usual Dead Parents stuff. Hence not writing about it. Hence the constant desire to write about it curtailed by angst about writing about it. Am I making sense yet? Probably not. This is why I’ve been so quiet.

I was expecting the anniversaries to be something of a problem. Perhaps that was a self-fulfilling prophecy, but perhaps it had to be. As I’ve said previously, I’ve always struggled to balance the desire to move on from the grief with the necessity of making that grief mean something. If the grief means something, if their deaths were truly significant in my life, then the anniversaries had to hurt me, and the more it meant the worse the pain had to be. Self-inflicted? Partly self-inflicted? A natural consequence, but one I need to feel that I could, in theory control so I convince myself it’s self-inflicted? I have no idea. Honestly, I have absolutely no clue how much of the pain I generate myself and how much is an inevitable result of the pain of bereavement. I can analyse, I can guess, but I can’t step far enough away from myself to get a clear view.

However, while I may not be able to get enough distance from myself, I finally have enough distance from the events. At last I can start to look at that period as a whole – which I need to do in order to lay claim to what happened and turn it into something I can use and take ownership of, rather than something that controls me. But it’s something I can’t do without feeling it all over again. Essentially, over the course of 2014 I had a very quiet, gradual and protracted version of the breakdown I probably ought to have had in 2005.

This manifested as paralysis and lockdown, which is typical for me. Back in the aftermath of the bereavements/injuries I would move between periods of being apparently functional and periods of shutting the world out. During the former, it looked like I was coping. In fact it was the lockdowns that were keeping me going and allowing me to process things. Making myself look functional has always been how I’ve outrun emotions and pain.

The trouble with pain is that it’s so bloody overwhelming. I can feel my way through it, learn to understand it and eventually control it, but doing so is all-consuming. I can’t do it and have a social life. I can do it and work, because I can plough all the emotional stuff into my writing. Fictional characters make excellent receptacles for anguish, and they’re great company. Other aspects of my work, specifically the ones involving human interaction, are less easy to integrate. Putting words in the mouths of non-existent people is fine, but conversing with real ones, whether in writing or in person, is harder. They’re a lot less easy to control, and when I’m trying to manage the pain I don’t have much room left over for uncontrollable things.

Which brings me back to why I’ve been so silent here. Firstly, I’ve written plenty about the Dead Parents and the grief here. There’s nothing more to be said. Except that there’s everything still to be said, so much that if I wrote a thousand posts I could barely scratch the surface. It’s futile and/or necessary, and either way it’s overwhelming. It’s self-indulgent and therefore unjustifiable, and/or it’s helpful to other people and therefore more responsibility and consequence than I can handle just now.

I’ve meant to write, and I’ve wanted to write, and again and again I’ve thought “I must write about this”. Then I’ve opened WordPress and found that I couldn’t. This is what I do with emails, too. I know who I need to contact. I plan the content meticulously in my head, then I open Gmail and can’t touch the keys. There’s no point, it’s all been said, or it hasn’t but either way the interaction will take up more energy than I have and it will make the pain worse. I really don’t want the pain to be worse.

So that’s what’s been happening. But now there are things I need to use this blog for, and I’ve started a project elsewhere that will (I think, or at least I hope) let me balance the pain and the output in a useful way. Cryptic? Hell yes, because I haven’t decided whether I’m telling people the specifics of the new project yet. It might just be for me, for the present at least.

Time to start writing here again. I can just about deal with interaction again. I think. We’ll find out. Welcome back to the Scenic Route.


When a belief is not a belief

There will be a lot of things in this post that I’ve touched on in the past, but I’ve never explained the full extent of what’s been going on in my head over the past year.

I’ve mentioned before that it was the 10th anniversary of my mum’s death in October and will be the 10th anniversary of my dad’s in July next year. I’ve written at length about my experiences with depression and a wee bit about ADD and PTSD. I know I have a tag for Schizotypal Personality Disorder so I must have spoken about it somewhere, but I’ve never really gone into it in depth because it’s less well-known and harder to explain. But it’s a factor in what’s going on at the moment (or at least it seems to be), so… here goes. I don’t claim to be an expert on this. I’m just someone who lives with it, and I’ll try to explain what it is, what it feels like and how it’s affecting me as clearly as I can.

Schizotypal Personality Disorder is a schizophrenia spectrum disorder. It involves obsessive rumination, anhedonia, eccentric behaviour, inappropriate emotional responses, magical thinking, social withdrawal and anxiety, strange means of expression and occasional hallucinations. I remember the psychiatrist who diagnosed me, back when I was 18, explaining that as someone with StPD I would never see the simple solution to a problem if there was a complicated one available. Apparently the big difference between StPD and schizophrenia is that with StPD, you can still tell when what you’re experiencing is not reality.

Over the years I have learned how to live with and control my symptoms. Getting the obsessive rumination under control was a huge personal triumph, achieved through CBT and visualisation and relentless discipline. My means of expression changed gradually, influenced by years of blogging. By writing for an audience and reading other people’s writing, I got the hang of how other people sound. I gradually let go of my unusual patterns and word choices (though a few little things remain – read enough of my writing or listen to me talk and you might spot my obsession with patterns of three). I learned how to tell delusions and hallucinations from reality – most of the time, at least.

The difficulty – and this is the really tricky thing to explain – is that sometimes I find myself in situations where I don’t believe my beliefs. Ten years ago, when my parents died, they were the only people I truly cared about. (Failing to form close relationships outwith your immediate family is a fairly typical StPD thing.) Those events planted the seed of a rather unhelpful idea – specifically, that the people I love that much will die. That my love can bring about the death of whoever receives it. The basis for this belief seems to be that if my life were a fictional narrative, that’s what I would expect to happen next.

Now, on the one hand, I am well aware that this cannot be the case. The world just doesn’t work that way. I do not live in a novel. What happened to my parents was statistically improbable, but that makes me the victim of a misfortune, not deus ex machina or a particular stage of my journey as protagonist. My love is not some kind of deadly force.

On the other, I know it is true. I’m talking about the kind of absolute certainty with which I know my name, or that the face I see in the mirror belongs to me. It is this knowledge that makes me feel so bloody guilty about loving my husband, because if I know that my love will cause his death. So I feel guilty and selfish for putting him in danger, and I live every day with the fear that my belief will prove accurate. Every time I come home I experience intense anxiety from the moment I arrive at  our building to the moment when I am actually in the flat and have seen for myself that he’s still here, still alive, not imaginary. This is not rational or reasonable. I should be able to leave the house without becoming convinced that something bad will happen to my husband. I should be able to unlock my front door without my heart pounding in my ears. I talk myself through the rational argument every time. Usually, delusions respond to repeated dissuasion and a certain amount of CBT. This one, however, is very strong and extremely resistant to everything I throw at it. It has not diminished over time. If anything, it has grown stronger.

That’s  a big part of the reason why I’ve been so antisocial this year. I’ve skipped so many get-togethers because I just can’t manage the usual social anxiety on top of this. I’ve always been a little bit freaked out by large groups, but usually I’ve enjoyed hanging out with people on a one to one basis. Not so much this year. This year I’ve been a lot more withdrawn because my head is too noisy, and also because as this belief gathers strength, it seems safest for everyone if I don’t let myself feel too close to people.

That’s a tough one to explain to people. “Sorry, I can’t meet because I’m really busy just now” is a much easier excuse to understand than “sorry, I’m worried that being friends with me will cause you harm so I’m just not doing the interaction thing right now”. I try to explain verbally when I have the energy, but honestly, talking this through takes a lot out of me and it’s easier just to write about it and hope that the message gets through.

The reason it takes so much out of me is that I fear people’s judgement. I know there will be people who look at this and think “well, you know that belief is nonsense, why don’t you just stop giving in to it?”, missing the fact that I don’t give in to it. I fight it every single day, I win minor victories every time I succeed in doing what I want and need to do without letting this stop me – but I haven’t won the decisive battle that gets it out of my life forever yet, and that’s not for want of trying. I also know that there will be people who write me off as completely crazy because I have a schizophrenia spectrum disorder and they don’t know enough about what that means to realise that they’re not unsafe around me. And I know there will be a few who think this is just attention seeking. It’s not. Even I am not masochistic enough to want the kind of attention that anything involving the “schizo” prefix gets you.

I’m writing this partly as explanation for why my 2013 has been quieter and less sociable than previous years, and partly because I’ve shied away from talking about anything explicitly StPD-related here in the past. I write about my mental health because I feel that if someone like me can’t be “out” about it, what chance is there for people working in less accepting worlds than the arts? Avoiding the issue of StPD was beginning to feel like a betrayal of that purpose, and an act of cowardice.

So there you go. A bit of insight into my head and hopefully into StPD as an everyday thing. I don’t feel like I’ve given you an accurate picture of how powerful and terrifying these beliefs can be, but I don’t know whether I can. I’ve been searching for the words for a very long time, and finally it felt like I should just get this much down and see whether the more minute, intense stuff follows later.

Hopefully some of this makes sense to people who are not me.


Adventures in Mental Healthcare: Hope

Today marks the start of Scottish Mental Health Week. As usual, whenever we reach an awareness day that applies to me, I feel annoyed that it’s still necessary. It’s 2013, aren’t we supposed to be sufficiently advanced and well-educated that we don’t make stupid judgements based on sex, age, orientation, race, whether you’ve ever had a physical or mental illness, or any other damn thing that people don’t have a choice in? Wasn’t this all supposed to be sorted out by now?

Maybe it was supposed to be. But it’s not, so for the present I will continue trying to reconcile my understanding of why we need these awareness exercises with my anger at the fact that they remain necessary.

I got involved with this year’s Scottish Mental Health Week unintentionally. I write ten minute plays for Jo Caulfield’s Speakeasy, and it just so happens that tomorrow’s Speakeasy is embracing the Mental Health theme. My play, Hawthorn & Candlelight, is not about mental health issues. It’s a comedy about a book of spells, so I suppose that if you were determined enough you could read it as an exploration of magical thinking and trace its roots in my own adventures in Schizotypal Personality Disorder, but that wasn’t my intention in writing it. I wrote it as a bit of pre-Hallowe’en fun and that’s about it. If my contribution fits the theme it’s not because of the play itself but because of what I am – mentally ill and “out”.

The fact that it’s Mental Health Week also makes me think it’s a good time for an update about my own situation and how things are going. Last time I wrote about this I was struggling to get access to the help I needed – most importantly, someone who could advise me on medication. I finally gave in and played another round of Russian Roulette with the meds, allowing myself to be put on fluoxetine to keep my serotonin levels in check. So far I’ve been fine – there’s none of the nausea I got from paroxetine or the memory loss and anxiety spikes that characterised my experience of sertraline. However, I’m still on a low dose just now. The real test happens in winter. At some point I usually tip from chronic dysthymia into a Major Depressive episode, and that’s when I have to increase my dosage and find out if my body can handle it.

I was also trying to find a suitable form of therapy to complement the drugs. I’ve been doing CBT on my own for over a decade and it’s a particularly useful weapon to have in my arsenal, but it’s not a magic bullet, and I have hit a point where either I need a different kind of therapy or help with expanding my CBT skills. As it stands, CBT helps me to combat depression and it was fantastic for dealing with OCD and StPD. Having got these things to a point where I can manage the symptoms, I now find myself dealing with issues that are more PTSD-related. I really want to get to a point where I don’t have nightmares, hypersomnia and a wide range of triggers that stimulate fearful, avoidant reactions. I want to be rid of the paralysing terror that accompanies the belief that everything I love dies.

Getting this kind of help is, as I have chronicled here, not easy. CBT with community psych nurses didn’t help me, because the CBT they were teaching was all stuff I’ve been doing on my own for over a decade. Eventually I lucked into an appointment with a GP who seemed to understand, and I made a particular effort to let the mask slip. I’ve been dismissed too many times for not appearing to be crazy enough because I can still do things like bathe, brush my hair, dress in a manner that makes me look pulled-together. I can still do these things until I am pretty far gone, because I have lots of practise.

During my first major depressive episode I learned that allowing myself to look depressed attracted attention. I didn’t want attention. I wanted people to stop noticing me, not ask me stupid questions about whether I was all right, to look the other way while I quietly got on with the task of destroying myself. So I wore make-up long after I stopped caring about my appearance. I wore my hair up to disguise the fact that it hadn’t  been washed in days. The way I dressed didn’t change, because at 18 I wore a uniform of black velour trousers, black t-shirts and sweaters. There was no tell-tale day when I started wearing jogging bottoms all the time, because there was nothing in my wardrobe that would allow me to live the cliche. For several months, as I gradually stopped eating and talking and dropped out of one class after another, I still looked like my normal self. Eventually I lost the ability to keep it together and began to look gaunt and dishevelled in spite of my repertoire of tricks, but I held out for a long time. By the time I started to look depressed, I was too far gone to seek help of my own accord.

So now, when I know I will be talking to a GP about my mental health, I make a conscious effort not to conceal the effects of my mind on my body. No make-up. No dry shampoo. I try not to think about the appointment until I get there so that I haven’t prepared what I’m going to say and how I’m going to keep my voice level while I’m doing it. When the familiar feelings of pain and fear arise, I try to let them show. After more than a decade of training myself not to show those feelings, that’s no small task. It’s not easy to bring that stuff to the surface because I never trust that I’ll be able to get on top of it again. But if you look like you’re coping, they assume you’re coping, so it has to be done. After many years of trying to tell doctors how badly I was doing without having to come right out and say it, I finally did. I explained about my convoluted suicide attempts and self-destructive behaviour, told them that even now, when I’m happy and loved and things are going well, I’m also depressed and fearful and every winter I dread that this might be the one where I just can’t take it any more.

The message got through. At last, I got an appointment with a psychiatrist. By this point I had started on fluoxetine, and the psychiatrist advised me that it was probably my best bet just now, which was comforting (if a little on the late side). He referred me on to the psychotherapy department at the Royal Edinburgh, so I finally had to bite the bullet and get over my fear of going there. Previous experience led me to expect a 45 minute triage appointment, during which I would have to try to give a potted account of myself and what I was looking for. Fortunately, this was nothing like my previous experience…

I had three triage appointments in total, all with the same doctor. There was time to give a full explanation of all the previous diagnoses and experiences and life events. The doctor talked me through my options and made some suggestions, and between the two of us we figured out the next step. I’m now on a waiting list for individual therapy to help me work through the PTSD. The down side is that the waiting list is long, so it may well be next February before I start – but simply knowing that the wheels are in motion helps immensely. In the meantime, I know what my options are if things get too difficult around the anniversary of Mum’s death or over the winter. I feel much better informed. And because this is being done on the NHS, I’m not freaking out about how to afford it.

After so many false starts, getting this far is a massive relief. When people talk to me about their own battles with the system, it’s really nice to be able to say “don’t give up, it is actually possible to get help” rather than simply sharing their despair at getting nowhere.

Keep trying. And keep talking. I might not always have the energy to respond to the comments and private messages I get after these posts, but I always, always read them and I always care.


Decade

As the sporadic nature of my blog posts probably indicates, I’m not finding it easy to write about what’s going on in my head this summer. Writing fiction? Not a problem. The things that are going on in fictional people’s heads are just fine. But my own is another matter.

The trouble is the anniversaries. On October 23rd it’ll  be ten years since my Mum died, with the 10th anniversary of my Dad’s death the following July (we’re just coming up on the 9th just now). I don’t know why the tenth anniversary should seem more significant than the 9th, but it does. Probably because it’s a decade and having a word for the amount of time that has passed makes it feel larger and more of a milestone.

Ten years ago I was 20 years old and living with my Mum and Dad. I’d moved back in after my first major depressive episode and was just gearing up to move out again. I had learned a hell of a lot from going through depression. I had been self-employed for the first time. I had arranged my first solo trip abroad. I had booked my first professional singing gig. My relationship with my parents had survived a pretty hellish time and we’d found our way back to solid ground. For the first time, I felt like we were three adults rather than two adults and a child. I felt like I was finally getting the hang of this life malarkey.

That lasted for one summer. Just one. I got back from Austria on the 18th of September. By the 3rd of October my Mum was in hospital. She had been having pains all year which had been dismissed as the menopause. The diagnosis suddenly shifted and became cancer. On the 14th we found out it was pancreatic. On the 23rd she died. I couldn’t believe how much things could change in the space of a month. Honestly, I still can’t.

Of course, the changes didn’t end there. My Dad’s death, the car crash, a good friend’s death, the two and a half years of being unable to move out of my dead parents’ house, all of that followed. It all took its toll and helped to shape my expectations for the future. Without realising it, I internalised the idea that if I love people they die, and if I value things they get taken from me in a painful way.

Being stuck in my parents’ house for so long was incredibly painful and I struggle to explain why, because I don’t know what frame of reference to appeal to when I’m talking to other people. It felt like being checkmated. The situation was completely out of my hands and there were no moves I could make. I couldn’t afford to buy, I had no rental history or guarantors, no-one I could move in with, and no idea how long the situation was going to drag on for. I couldn’t even redecorate and make the place mine, because that would have meant destroying something that was very special to my parents (that house and the way it was decorated were part of the long-term aspiration that got them out of their council estates and into the life they wanted). But more importantly, it would have meant conceding that I was going to be there for a while, and that was not an option. I might have had to tolerate the situation, but I did not have to give in to it.

However, there was another problem with being stuck there. It was completely the opposite of what I had wanted from life. I moved out at 17 because I couldn’t wait to get out and start my own life. Moving back when I was ill was galling, but I was determined that I would get myself back on my feet and start again. What I envisaged was a life of moving around a lot, working in different places, being ready to take off to somewhere new at short notice, underpinned by the security of knowing that I always had a home to go back to if I needed it. It’s the kind of life that I see most of my friends in their early to mid 20s living now. Instead, I found myself with a property to look after and legal issues to deal with. I was faced with the realisation that if I decided to freewheel my way around the world now, I would be doing it without anywhere or anyone to come back to. Perhaps there are people who can handle that kind of isolation, but I’m not one of them. I need a little bit of stability underpinning my chaos, so I had to rethink the kind of life I was going to build.

I began a complicated game of hide and seek with myself. I would let myself care about things, about ideas, about career options, about people – but never too much. I always had to be able to look at the thing in question and say “I would be sad if I lost this, perhaps it would stop me in my tracks for a while – but I would survive it, it wouldn’t break me”. That way I could reassure myself that I was still functioning, that I hadn’t cut myself off or shut my emotions down as a result of the loss I had suffered, but at the same time I wasn’t risking too much. Every new connection with another person took me out of my comfort zone a little bit, but I never set foot beyond my safety zone.

That continued until 2011, when I realised I couldn’t go on like that any longer and completely revamped my attitudes towards pretty much everything. The way I work underwent massive change and I finally found my feet as an artist. I moved back from London. I fell in love. We got together, moved in together, got a cat, got engaged and got married in a very short space of time. I had forgotten that I had it in me to be that impulsive and uncalculating. At this point, I am starting to feel like I’ve got the hang of life again – and that is fucking terrifying, because I remember what happened last time.

So I am spending this summer trying to silence the thoughts that tell me that I’m not allowed to feel happy or secure, and that it’s only a matter of time before the other shoe drops. It’s completely irrational to believe that I can bring harm to people just by loving them. I know that. But the little voice in my head that says “Yes, but look what happened last time” isn’t big on listening to reason, and it’s a pretty large dose of fear to live with. This is why I’m going back to therapy. I cannot let my life be governed by an irrational belief. I will not remain paralysed by fear of 2003 – 2005 happening again. I do not appreciate the last vestiges of schizotypal behaviour trying to re-establish their foothold and getting in my way.

It’s not 2003 any more. That’s the important thing. And that’s what I need to get into my head somehow.


Picking up from roughly where we left off…

Hello blog, it’s been a while. May is always a bit of a crazy month. I’m not sure whether this is to do with seasonal shift or whether it’s a pattern I learned at school when it was always exam season, but the anxiety and depression always seem to squeeze a little bit tighter in May. It was also the Month of Many Deadlines, so between one thing and another I didn’t get anywhere near WordPress. But here I am now. Hello again.

There are plenty of things I’ve been meaning to write about, but I’ve been in the grip of depressive thinking recently. I get to the stage where I can’t face writing about anything because I’ve got the Demon in my head telling me that no-one is remotely interested and there’s no point in writing. My energy diminishes, so the act of writing out my thoughts becomes considerably harder (I am eternally grateful that I had solid plans to work from for my freelance gigs). It’s a significant danger sign for me, because I am always in the mood to pick apart my own psyche unless I’m getting depressed, and I have to be quite far gone before I lose the will to write.

Which brings me, by means of a completely seamless and not at all clunky segue, to the subject of a quote I see doing the rounds on Facebook. It’s attributed to Dorothy Parker, but I have no idea whether this is accurate and I am being too lazy to check. It goes like this “I hate writing. I love having written.”

Apparently many of my writer/aspiring writer friends agree with this, at least to the point where they’ll re-post it. I see an extreme version of this sentiment in some of my ghostwriting clients, who want their name on a book without the hassle of actually writing it. For me, it’s the other way round. I love writing. I really enjoy the actual process of stringing words together and typing them into my laptop, watching the word count rack up. Writing longhand is even better. There is something so incredibly beautiful about putting ink on a page. I like the sensation of forming letters, I like watching the ink turn from wet to dry. I never write with cheap ballpoints if I can avoid it,  because it’s a waste of an experience. Gel pens, fountain pens, rollerballs – those are delicious to write with. When I learned that my husband had a favourite type of pen, my heart skipped a beat.

When I write, my brain calms down a bit. My head no longer feels like a browser window with dozens of tabs open. My focus narrows. I never get as far as a single tab, whether literally or metaphorically, unless I’m in hyperfocus, but I get closer than when I’m not writing. I create a playlist for each project or I put on a film or a series with the right voices to help me get absorbed in the task. I don’t answer the phone (any excuse). I feel more settled.

Then I finish whatever I’m writing. That’s when we ditch the calm and move onto the storm. Goodbye enjoyable act of crafting words, hello maelstrom of self-doubt and anxiety. That’s when I have to actually read whatever I’ve written and see all the flaws and clunky bits staring back at me. It’s horrible. It’s so much easier when you just don’t finish things, which is why I have a “Bits and Pieces” folder. All my favourite stuff is in there. The half-formed ideas that live in that folder are the best ideas, because I haven’t got round to destroying them yet.

I get over it, of course. When I’m writing for other people I don’t have the luxury of all this anxiety. When it comes to my own work, I freak out a bit more. Especially when I write plays, because then I have to hear what I’ve written at some point. Then I sit in the audience and second-guess the reactions of everyone around me. I do all the things I tell everyone else not to do, like measuring the reactions my piece gets against anything else I’ve seen recently and trying to work out whether I think audiences are the best people to assess my work or whether I think they’ll enjoy anything that’s dressed up the right way. It’s fun. My demons get some healthy (for them) exercise. I get to question the extent to which the demons really live in my head and to what extent they’re part of the tortured artist persona that I love and loathe in shifting measure. (Some days it feels like actual mental health torment, some days it just feels like I’m a bit of a wanker. Both statements are true. Sometimes concurrently. Like I said, fun.)

If I were able to skip straight to “having written” without the actual writing bit, I couldn’t do it. All the anguish and none of the good stuff where I spend days in front of the keyboard, wandering the internet to find the music and snippets that keep my brain ticking over, doing stuff with words? Hell no. The angst! I can only imagine.

The next post will be more upbeat. I wrote a play for the Fringe – my first commissioned play, I get paid for it and everything – and now that it’s had a couple of drafts and there are actors involved I’m starting to like it again.  There are things I’d like to say about it, and I should get in practise before August rolls around and I have to start telling people to go and see it.