Tag Archives: Beliefs

When a belief is not a belief

There will be a lot of things in this post that I’ve touched on in the past, but I’ve never explained the full extent of what’s been going on in my head over the past year.

I’ve mentioned before that it was the 10th anniversary of my mum’s death in October and will be the 10th anniversary of my dad’s in July next year. I’ve written at length about my experiences with depression and a wee bit about ADD and PTSD. I know I have a tag for Schizotypal Personality Disorder so I must have spoken about it somewhere, but I’ve never really gone into it in depth because it’s less well-known and harder to explain. But it’s a factor in what’s going on at the moment (or at least it seems to be), so… here goes. I don’t claim to be an expert on this. I’m just someone who lives with it, and I’ll try to explain what it is, what it feels like and how it’s affecting me as clearly as I can.

Schizotypal Personality Disorder is a schizophrenia spectrum disorder. It involves obsessive rumination, anhedonia, eccentric behaviour, inappropriate emotional responses, magical thinking, social withdrawal and anxiety, strange means of expression and occasional hallucinations. I remember the psychiatrist who diagnosed me, back when I was 18, explaining that as someone with StPD I would never see the simple solution to a problem if there was a complicated one available. Apparently the big difference between StPD and schizophrenia is that with StPD, you can still tell when what you’re experiencing is not reality.

Over the years I have learned how to live with and control my symptoms. Getting the obsessive rumination under control was a huge personal triumph, achieved through CBT and visualisation and relentless discipline. My means of expression changed gradually, influenced by years of blogging. By writing for an audience and reading other people’s writing, I got the hang of how other people sound. I gradually let go of my unusual patterns and word choices (though a few little things remain – read enough of my writing or listen to me talk and you might spot my obsession with patterns of three). I learned how to tell delusions and hallucinations from reality – most of the time, at least.

The difficulty – and this is the really tricky thing to explain – is that sometimes I find myself in situations where I don’t believe my beliefs. Ten years ago, when my parents died, they were the only people I truly cared about. (Failing to form close relationships outwith your immediate family is a fairly typical StPD thing.) Those events planted the seed of a rather unhelpful idea – specifically, that the people I love that much will die. That my love can bring about the death of whoever receives it. The basis for this belief seems to be that if my life were a fictional narrative, that’s what I would expect to happen next.

Now, on the one hand, I am well aware that this cannot be the case. The world just doesn’t work that way. I do not live in a novel. What happened to my parents was statistically improbable, but that makes me the victim of a misfortune, not deus ex machina or a particular stage of my journey as protagonist. My love is not some kind of deadly force.

On the other, I know it is true. I’m talking about the kind of absolute certainty with which I know my name, or that the face I see in the mirror belongs to me. It is this knowledge that makes me feel so bloody guilty about loving my husband, because if I know that my love will cause his death. So I feel guilty and selfish for putting him in danger, and I live every day with the fear that my belief will prove accurate. Every time I come home I experience intense anxiety from the moment I arrive at  our building to the moment when I am actually in the flat and have seen for myself that he’s still here, still alive, not imaginary. This is not rational or reasonable. I should be able to leave the house without becoming convinced that something bad will happen to my husband. I should be able to unlock my front door without my heart pounding in my ears. I talk myself through the rational argument every time. Usually, delusions respond to repeated dissuasion and a certain amount of CBT. This one, however, is very strong and extremely resistant to everything I throw at it. It has not diminished over time. If anything, it has grown stronger.

That’s  a big part of the reason why I’ve been so antisocial this year. I’ve skipped so many get-togethers because I just can’t manage the usual social anxiety on top of this. I’ve always been a little bit freaked out by large groups, but usually I’ve enjoyed hanging out with people on a one to one basis. Not so much this year. This year I’ve been a lot more withdrawn because my head is too noisy, and also because as this belief gathers strength, it seems safest for everyone if I don’t let myself feel too close to people.

That’s a tough one to explain to people. “Sorry, I can’t meet because I’m really busy just now” is a much easier excuse to understand than “sorry, I’m worried that being friends with me will cause you harm so I’m just not doing the interaction thing right now”. I try to explain verbally when I have the energy, but honestly, talking this through takes a lot out of me and it’s easier just to write about it and hope that the message gets through.

The reason it takes so much out of me is that I fear people’s judgement. I know there will be people who look at this and think “well, you know that belief is nonsense, why don’t you just stop giving in to it?”, missing the fact that I don’t give in to it. I fight it every single day, I win minor victories every time I succeed in doing what I want and need to do without letting this stop me – but I haven’t won the decisive battle that gets it out of my life forever yet, and that’s not for want of trying. I also know that there will be people who write me off as completely crazy because I have a schizophrenia spectrum disorder and they don’t know enough about what that means to realise that they’re not unsafe around me. And I know there will be a few who think this is just attention seeking. It’s not. Even I am not masochistic enough to want the kind of attention that anything involving the “schizo” prefix gets you.

I’m writing this partly as explanation for why my 2013 has been quieter and less sociable than previous years, and partly because I’ve shied away from talking about anything explicitly StPD-related here in the past. I write about my mental health because I feel that if someone like me can’t be “out” about it, what chance is there for people working in less accepting worlds than the arts? Avoiding the issue of StPD was beginning to feel like a betrayal of that purpose, and an act of cowardice.

So there you go. A bit of insight into my head and hopefully into StPD as an everyday thing. I don’t feel like I’ve given you an accurate picture of how powerful and terrifying these beliefs can be, but I don’t know whether I can. I’ve been searching for the words for a very long time, and finally it felt like I should just get this much down and see whether the more minute, intense stuff follows later.

Hopefully some of this makes sense to people who are not me.


Being the Squeaky Wheel

I’m not going to assume that everyone knows the expression “the squeaky wheel gets  the grease”, since I actually got through the first 20 years of my life without encountering it. It’s a phrase used to encapsulate the idea that the people who make the most noise are the ones who get what they want.

This idea is completely opposed to what I was taught growing up. Over and over again I was told that you don’t get what you want by shouting or demanding or even just being politely explicit. You get what you want by working for it quietly (and methodically, which was the bit I always struggled with) and if what you do has sufficient merit you will get what you want. You don’t kick up a fuss about why you’re more deserving than anyone who might want the same thing, you just trust that if you’ve done what you need to do, you’ll get out what you put in.

Realising that life is not like that has been an ongoing process for the past 30 years, but it’s such a deeply-held belief of mine that I feel I am constantly locking horns with life because of it. Surely life should be like that? It should be possible? I can’t quite let go of that idea, even though I’ve been shown time and again that life actually favours the squeaky wheels. (Surely when you can see clearly that something you believe is wrong it should be possible to discard or even just adjust that belief? That would be the rational thing to do, and I get very frustrated when I can see the rational path before me and can’t allow myself to take it. I also get frustrated that I can never type the word ‘frustrated’ accurately on the first attempt.)

I see it to a certain extent in my professional life, but it’s a necessary evil there. It really isn’t enough for a writer, director or actor simply to do their work well and honestly and hope their merits will be recognised, because there are countless others out there who are just as meritorious and there aren’t enough opportunities to go round. In addition to having merit, you must also be good at publicising yourself (unless you’re born very well-connected or you get a particularly lucky break, in which case count your blessings). It’s a pretty common frustration, since few of us seem to like doing self-publicity and everyone seems to think that everyone else is better at it than they are.

However, at the moment it’s more of an issue in my domestic life than my professional one. I dread things going wrong around the house, because if it’s anything that necessitates dealing with insurance companies I know I’m going to have to be the squeaky wheel. Yesterday, while I was still in my pyjamas and considering going back to bed with a splitting headache, our downstairs neighbour came to let us know that there was a leak from our flat coming through his ceiling. A bit of searching revealed that the leak was coming from our combi boiler. We have insurance through Shield, so I called them and asked for an engineer.

Getting on for 5pm, I called again to ask where the engineer was. I know they have call-outs until 11pm, but I’ve also been through this often enough to know that if you don’t have the engineer on site before 6pm your chances of getting things fixed that day decrease considerably. I’m also still in a bad mood with Shield since the engineer they sent out to do a routine service last November told us we had a carbon monoxide leak and left us without heat or hot water for three days, only for a second engineer to come out to finish the job and tell us that there hadn’t actually been a leak in the first place and that the first engineer had misread his monitor. At least this time we can see there’s a leak, but I’m still not thrilled by having our heating and hot water cut off in January. I have spinal problems that cause me a lot of muscle tension and I rely on hot water to keep the pain under control, so the cold water thing gets old fast.

So the engineer comes out, does his thing, says that he has to order parts and will be back in the morning. He orders all the parts he could possibly need. His supervisor refuses to authorise the more expensive parts. I make it clear that I am not going to be happy if those turn out to be the parts we needed. This morning comes. No engineer. I phone up to find out what is happening. I’m told that the job isn’t booked in for today but they’ll try and get someone out this evening.

This is the difficult bit. On the one hand, this is completely unacceptable. We pay for this insurance – by the logic I grew up with, we have quietly and regularly fulfilled our end of the bargain. What should happen next is that Shield fulfils theirs, quickly and with minimum fuss, and this should require no more from me than calling the problem in. We certainly shouldn’t be facing another indefinite period without heat a mere two months after the last time, especially as the boiler was fine until we had it serviced and has been nothing but trouble ever since. Since I am obviously going to have to be the squeaky wheel, I would prefer not to do do it by halves. A nuclear loss of temper would be really, really satisfying.

On the other hand, I’m on the phone to some poor girl who is not being paid enough to deal with me raging at her. It is also not her fault. She’s just telling me what comes up on her screen. Losing my temper with her would hardly be fair. But what she is telling me is that this problem cannot be resolved quickly and without us spending days huddled round the halogen heater, and as long as I remain calm this is what she continues to tell me. Honey is not working. It is only when I become somewhat vinegary that she agrees to put me through to her manager. When I speak to the manager my tone is emphatic, not impolite but obviously angry. Suddenly it becomes possible to get an engineer out today.

By 16.30 we had heating and hot water again. I’m pleased about that. However, we only have it because I got angry and won an argument. I’m quite good at winning these arguments, but I don’t like myself afterwards. Getting angry is a loss of control and I’m not a fan of those. I’m not sure to what extent my frustration grows from disappointment in myself for letting myself give in to the rage and to what extent it comes from having to do this in order to obtain a service I’ve already paid for. If I hadn’t argued so vehemently we would still be waiting for the initial appointment, never mind having the boiler fixed. The squeaky wheel did indeed get the grease – but damn it, it shouldn’t be this way and I don’t know how to let go of that. Perhaps more on that way of thinking in a future post. Perhaps not. We’ll see. I’m exhausted and drained and not committing myself to anything I might later regret…

At least I can say this much – as miserable as the experience was, it was a hell of a lot easier going through it with my husband than on my own. We raged together, then later we laughed together and rejoiced in being able to have showers and baths again. Now we’re blowing off a bit of steam, in his case killing video game monsters and in my case telling the interwebs all about it. Time for tea, chocolate brownies and then bed, in the hope that tomorrow will be better than the last two days. This particular wheel has done enough squeaking for now.