Category Archives: Tracing the Scenic Route

Things I do for the sheer giddy hell of it

If you ask me what I like doing in my (ha) copious free time, most of my answers will be completely unsurprising. It’s mostly arty stuff, overlapping with my professional life – writing, music, reading, watching films, watching plays. I’m also fond of cooking and baking, and I like trivia quizzes.

There’s something that all of these things have in common. Specifically, I’m good at them. (Well, strictly speaking I’m not good at music, I am a terrible musician, but I’m a good singer so I can fool people into thinking I’m good at music.) I can interpret books, plays and films and discuss them endlessly. I am a repository of information that is never useful anywhere other than a quiz or when writing a play or a novel. My lemon drizzle cake is fantastic, and I make a killer Cullen Skink.

Without wishing to sound arrogant, I’ve always been pretty good at these things. Training and practise have helped, of course, but I don’t remember a time when I couldn’t do all of these things at an above average level.

Like many “gifted” people, my gifts came at the cost of my work ethic in my early years. Being naturally quite good at a lot of things, I was able to coast. I was clever enough to find workarounds for things that challenged me, but not quite clever enough to foresee the problems I was storing up for myself. Music is a good example here. I took singing lessons and, briefly, piano lessons when I was 14. For some reason reading sheet music was difficult for me, so rather than practise until it became easy I relied on having a good ear, decent pitch and muscle memory to see me through. It works for a little while, but I assume that if I’d been able to continue with piano for longer I’d have learned that there’s a stage at which you can’t just fake being good any more, you need to actually be good. I certainly reached that stage with things like languages. I got to university and suddenly the As weren’t quite as effortless as they used to be, so I found myself battling to acquire a work ethic at 17.

With all of that in mind, it always surprises me that one of my favourite hobbies is playing computer games. Let it be known that I am really, really bad at computer games. I can hold my own in some fighting games where furious button-mashing will carry the day. I’m decent at Tetris. But that’s about it. Where most games are concerned, including many of my favourites, I suck badly.

The first game I remember playing was Dig Dug. An uncle of mine had a home computer back in the days when those were rare, and he let me play it a couple of times. I loved it. I was bad at it.

Next came my cousins’ Sinclair Spectrum. They had Cauldron. I was probably about five and obsessed with anything witch-related, so I fell madly in love with the game. I don’t think I ever got past the first couple of screens, but that didn’t matter. There was this world in the computer and I could interact with it and I WAS GOD. This is probably the basis for much of my enjoyment of these games.

Eventually my dad set up a home office and I was sometimes allowed to play Solitaire on it, which wasn’t quite the same thrill as Cauldron. I continued to covet my cousins’ Spectrum, then their Nintendo, but eventually Dad let me expand my PC game repertoire with a pirated copy of King’s Quest 3. It’s a good thing I was dreadful at it and didn’t have a copy of the manual that had all the copyright protection spells in it – the pirated version was missing half the game, and I’d have been gutted if I’d successfully felinified the evil wizard only to be told I had to Insert Disk 2. Still, my crapness didn’t hold me back. I loved this unclearly-drawn world of magic and maps and I spent many happy hours trying in vain to climb down that bloody mountain path and typing in commands the game didn’t understand.

Then, at about the same time, my cousins got a Sega Megadrive and I got Sid Meier’s Pirates!, which still holds a place in my heart as one of my favourite games ever. At the same time as conquering the Caribbean (or failing spectacularly to), I was learning the delights of Sonic, Street Fighter II and Streets of Rage. Since my access to these games was severely limited, restricted not only by the infrequency of our visits but by the necessity of sharing with my cousins, I’m not surprised that I never became much good at them. But I loved them all the same.

I pestered my parents briefly to let me save my pocket money for a console of my own, but my dad brought that dream to an abrupt end by explaining that such a feat would take me years, and even then I wouldn’t be able to afford the games. I made do with being allowed to play games on his PC at weekends. I started to get better at Pirates and the Sierra games, along with a handful of oddities that entered my life because I found them in the sale bin at Makro or because I’d got my hands on a dodgy copy. Without wishing to enter the current contentious debate about “girl gamers”, I found that liking computer games put me squarely in the company of the boys at school. I don’t know whether I was the only girl in my class (both at primary and secondary, now that I think about it) who played computer games, but I was certainly the only one who was open about it and part of the little circle of kids swapping disks and photocopied manual pages under the desk. By those means, games like Monkey Island, Theme Park and Dune entered my life. I fell head over heels for the wit and lateral thinking of Monkey Island (well, wit, lateral thinking and GHOST PIRATES), and while I found that the resource management of the other two games challenged my attention span, I enjoyed the feeling of achievement I got when something I’d worked hard at went right.

Unfortunately, once I started secondary school I lost my little coterie of fellow gamers. If there were people who liked computer games at my tiny secondary school, I didn’t find them. I continued to play alone, but my supply of new games dried up. Then I began to concentrate on theatre and spent less time on games, and they remained an occasional pleasure for some years. I watched with envy as the World of Warcraft craze began, but I never got involved because I’m too much my father’s daughter to play anything I have to pay a subscription for. One-off purchases and single-player are more my jam. As an adult I contented myself with stocking up on legal copies of all those games I had once pirated and completed some that had stumped me as a child, sometimes due to my own ineptitude and sometimes due to my inability to afford hint lines/hint books (on which note, fuck you Sierra for putting the unicorn bridle in King’s Quest IV behind another object on a screen that was only accessible once in the game and generally only found by people with hint books).

Eventually it occurred to me that as an adult, I could now buy a games console if I wanted. I still couldn’t quite bring myself to pay the price for a new one, but I bought a second-hand Wii from a friend. He left Street Figher II and The Legend of Zelda: A Link to the Past on it. A few years later when my now-husband moved in, we fetched his old consoles from his parents’ place and began to play through old favourites. I started searching the internet for old PC games that I hadn’t been able to find copies of, which led me to GOG, and from thence to Steam and Humblebundle… Indie game El Dorado.

Just as I loved the old, simple games that introduced me to the joys of pixels on a screen, so I love the gorgeous games that are being released now. There’s so much beautiful artwork, so many brilliant scores, such clever gameplay… Some truly excellent games, some that do really interesting things that aren’t quite successful but are still really cool… and some that I don’t enjoy but am still interested to check out, especially considering that games don’t cost a fraction of what they used to when physical distribution was the only option.

It makes me really happy to have grown up with games and seen the progression from Dig Dug and Space Invaders to things like The Bridge, Braid, Crusader Kings II, Pid, and the game that has been my favourite thing for the past year, Don’t Starve.  I’m not bad at the stunningly-illustrated puzzles in The Bridge, though I do get seasick from the spinning screen. I don’t quite have the patience for Braid but I love to watch my  husband play it. I truly suck at Crusader Kings II, but once I stopped trying to be a good ruler and embraced my capacity for tyranny it became lots of fun. Don’t Starve is probably the game I’m best at, though I’m still pretty terrible and I cheat like hell by using mods to alleviate some of the game’s less forgiving aspects. I will never be one of these people with a massive fancy base, breezing through Adventure Mode just for kicks, but I will be the one having a high old time fighting death-or-glory battles with beasties several times my size. Sometimes I don’t have to be particularly good at things. I don’t say this often, but… from time to time, just having fun is enough.

Occasionally I encounter people who really seem to have a problem with adults playing computer games. I’ve been told that I should have grown out of it by now, and that it’s sad/shocking/both to see “a grown woman” wasting her time this way. Unsurprisingly, this is not criticism I choose to entertain. Firstly it’s my spare time and I’ll do as I damn well please with it. Second, I don’t consider it wasted time (and I suspect that if the people who say these things knew more about the massive, diverse range of games out there, they wouldn’t either). I enjoy every minute of it, even if I’m not good at them. That was true when I was eight and when I was sixteen. It’s true at thirty-two. I fully expect it to be true at sixty-four, and be damned to what anyone else thinks.

And when I’m 64, I expect that I’ll still be asking my husband to defeat the Helmasaur King for me. I never could kite that guy, and sometimes a girl has to know when to ask for help.


Knowing where I stand

There are some obvious difficulties inherent in living with mental health issues. There’s the apathy, the auditory hallucinations, the need to lock the car door three times. There’s the social stigma and the knowledge that by being open about it I might well cost myself opportunities. There’s the day to day management and constant updating of my CBT skills.

But among the weirdest and more difficult things is accurately assessing the severity of the issues. If you’ve never been “normal” or non-disordered, it’s hard to figure out how far from “normal” you currently are. (The world is full of people who try to say helpful things like “there is no normal”, “everyone’s a bit weird” and “you shouldn’t pathologise emotions”. Well-intentioned, but honestly, not helpful when you’re dealing with mental health problems. Yes, everyone has their idiosyncrasies, but there’s a difference between people’s quirks and actual disorders, and identifying mental health problems is not the same as pathologising emotions.) If you’re trying to figure out when it’s time to get help, you need to have some idea of how far into disordered thinking you’ve gone. Figuring that out requires observation of other people and comparison with them – for me, at least.

The tricky thing is doing this without letting it descend into a Crazy Contest. The point is to keep tabs on my own state of mind, not to prove that I am the Craziest Crazy that ever was Crazed. The difficulty arises from the fact that it’s hard to be objective and dispassionate about my own headspace, and there aren’t many reliable external criteria to help.

When I had my first and worst breakdown, the one where I stopped talking, eating or moving unless forced, that was categorised as Severe. Severe with Catatonic Features, to be specific. What I considered “getting better”, my shrink considered “Moderate”. I haven’t experienced full-on catatonia again, and I hope I never will. (Though just as a side note, this is what I mean about the difference between handling a disorder and “pathologising emotions”. I know what profound sadness and loss feel like, and I know what catatonic depression feels like, and I can assure you that they are nothing alike. What I was being treated for back then wasn’t “having feelings”.)

As of my last assessment, it’s categorised as Mild/Moderate. This is the best the headspace has ever been, so this blows my mind in two ways. First, those terms don’t feel like they do justice to the vast gulf between how I am now and how I was then. It feels like there ought to be at least a dozen different words standing between me and catatonia. Second, if this is Mild/Moderate, then what must it feel like if you’ve only ever experienced Mild? Or if you’ve never experienced depression at all? How does that work? My earliest memories of depressive feelings and behaviour date back to when I was only two or three. I’ve never been “normal”, there has never been a time in my life where I wasn’t this way. There are, apparently, people out there who do not live with depression, and I have no idea what that feels like. I genuinely can’t even imagine what it must be like. I’m fascinated by the concept.

That said, I’m fascinated with other people’s experiences of mental health in general. It seems like everyone has either experienced mental health problems or watched someone go through them at close quarters. It surprises me how many people I’ve met who have been hospitalised at some point. Bizarre as it may seem, the fact that I’ve never had to have inpatient treatment is one of those things which, in my darker moments, causes me to question the legitimacy of my own disorder. The “logic” runs this way: If I’ve never been hospitalised then I can’t have been all that bad, in which case my depression (etc.) is much less severe than theirs. Same thing with suicide attempts, I’ve never been caught in the attempt or ended up in hospital, so my depression can’t have been that bad.

Of course, that doesn’t take account of the fact that when I was catatonic, I probably should have been in hospital. If my mum hadn’t been able to take care of me, that’s where I would have been. Well, in hospital or dead. When I lived alone there was always an undercurrent of worry in my mind in case I misjudged myself and ended up catatonic again before I sought the right kind of help. I’ve always tended to go to ground when my headspace isn’t good, so it wasn’t unusual for me to vanish every so often. If I had slipped, I could have succeeded in starving myself to death. Would I have been far enough gone to merit hospital treatment? Yes. Would I have caused my own death without ever having been hospitalised or having any record of suicide attempts? Yes. So presumably these things are not good yardsticks for severity. They’re not legitimising experiences, they’re just experiences that people might have had depending on their circumstances. It’s a lot easier to end up getting sectioned if you have a disorder that causes you to behave strangely in front of other people. Disorders that manifest in withdrawal and introversion make it easy just to waste away unnoticed. That this could have been my lot still frightens me. That’s the thing I am guarding against.

On the flip side of this, I sometimes read  or hear about other people’s experiences and they seem milder than what I’m used to. I work hard to listen and read without judgement, but it’s an emotional topic connected to a strong fear, and I would be lying if I said that I’d never had a rogue thought along the lines of “Pfft, low moods, that’s nothing. Come and talk to me when you can’t feel anything at all, then you’ll know what real depression feels like!”

This is nonsense, of course Different people experience different levels of severity. I know that. I understand it. That’s why there are different categories. Also, catatonic depression isn’t the only legitimate form of depression. I’m aware of all of this. But when you’re dealing with mental health issues, it’s a constant battle to be taken seriously (both by myself and by other people) and to accept my own diagnosis and experiences as legitimate. When I feel myself slipping and decide to seek help, I feel bad about taking up my GP’s time because there’s still a part of me that doesn’t really accept that there’s a whole realm of depression that lies between “fine” and “catatonic”, and that I don’t have to be unable to function in order to justify asking for help.

This is why I feel it’s important for people to speak openly about their mental health, if they can. The more people there are talking about it, the better equipped we as a society will become to talk about it (I hope). The better equipped we are, the easier it will be to assess our own mental health and gauge how we’re doing. I often wish that when I had my first breakdown, the internet had been further developed. I had access to it and was using it in 2000, but the blogosphere was considerably smaller and it would have been great to have had access to the range of experiences that you can find online today. Future Jen-equivalents, I hope you find this and I hope it helps.

Still, as important as I believe it is, it’s just as important for me to remember that my mental health and dead parents aren’t all there is to me. They’ve been major influences on my life and my choices, and I’ve no plans to stop writing about them, but I think that for my next post I’m going to find a less angsty topic (and by that I don’t mean arts politics, the other major strand to this blog). I’m sure I can do it if I try…


You wanna know how I got these scars?

Most people don’t notice the largest scar on my face. It hides in plain sight. It’s very pale, I’m very pale. But it’s quite long, starting about an inch above my left eye, running all the way up my forehead and ending about an inch and a half past the hairline.

The smaller facial scars are the ones that make their presence felt, because they’re the ones that interfere with the shape of my right eyebrow. It always looks a bit oddly plucked.  This annoys me far more than the deep, pale scar on my forehead.

Then there’s the scar on my left knee. It’s ugly and unmissable – or at least it would be if anyone ever saw my knees. That seldom happens. I don’t have much of a summer wardrobe, living in a place where warm weather is not abundant, but even the skimpiest of my dresses tend not to show off my legs. There’s not much about my body that makes me feel self-conscious, but the scar on my knee does. I hate it.

All of these scars are from the same incident, and they all turn ten years old today.

On the 8th of March 2005 I was involved in a five-car pile-up. I was still singing back then, and I was on my way home after a performance. The crash took place on Queensferry Road, just past the Quality Street junction heading away from town. Having grown up in the north-west of Edinburgh, it’s one of those places that has always been part of the landscape of my life.

At about 23.30, someone swerved out from his side of the road and onto mine. Despite the time of night, the road was busy. There was no evasive action I could take. All I could do was brake and hope.

The approaching car hit me. The car behind hit me. Apparently two other cars hit mine as well, though I don’t know how. My awareness ends with approaching headlights and the thought “I fucking refuse to die here” and resumes in the wreckage, watching blood dripping onto the airbag and realising it could only be mine. My passenger door was open and someone was telling me to stay calm and wait to be cut out of the car.

With impeccable shock-logic, I reasoned that if I didn’t have to be cut out there might be some chance that my car – my Mum’s car – might be saved. So I unbuckled my seatbelt and climbed out. Via the passenger door, because mine was staved in. As I hauled myself out I noticed that my left wrist was probably broken. Didn’t clock the multiple pelvic fractures, though. I staggered around for quite a while, trying to get someone to tell me what had happened and whether it was my fault (at this point I couldn’t remember the events prior to impact), before the paramedics arrived.

The twenty minutes or so that I spent in that ambulance were among the worst in my life. I was bleeding, frightened, in pain – and when the paramedic asked me if they should call someone, I had no answer. I desperately wanted my Mum and Dad, but Mum had been dead for over a year and Dad for eight months. Instead I lay there, trying not to freak out as they strapped me into the neck brace, and wondered what time it was and which of my friends would not mind being disturbed. I knew I was nobody’s first priority. It was an incredibly lonely certainty. I asked them to call the friend I had given a lift to that night, on the grounds that she would probably still be up, then I channeled my fear and loneliness into bickering with the paramedics about how long it would take us to get to the hospital. They said ten minutes. I said that from Queensferry Road to the ERI with a head trauma patient was never ten minutes. I had some vague memory of Mum telling me that ambulances don’t speed or put the siren on when the patient has head trauma, and I knew exactly how quickly you could get to the hospital, whether by staying within the speed limit or by breaking it, thanks to Dad’s tests and then his stroke. In those facts, in that knowledge, there was a little bit of them. It was the best I was going to get. Those poor paramedics…

What followed was a jumbled, nightmarish experience. In that overheated A&E ward I drifted in and out of consciousness. Sometimes I’d come to and someone would be doing something – plastering or stitching me up, wheeling me off for scans, taking blood. They took blood so many times. I was terrified that they’d found the same cancer in me that killed my parents. I had been warned that I might have it too and opted not to be tested. They kept taking my blood and not telling me why, and I was sure that they were making certain before telling me I was going to die. I didn’t have cancer, of course. I’m still here. It was just bad luck that my first couple of vials got contaminated.

By the end of the night, as the shock and morphine began to wear off, I knew that I had been in a crash with a combined speed of 100mph. I had five pelvic fractures, damage to my pubic bone and sacrum, my left wrist was broken and had been re-set, the laceration in my knee went all the way to the joint, glass had been removed from my right eyebrow area, and my forehead had been split open. Apparently my skull was visible, but no-one would give me a mirror. I can understand why, but honestly – how many chances am I going to get to see my own skull? Hopefully not many, but I would have been really interested to see it while it could be seen.

Scar 1

The doctors who treated me expected me to be in hospital for at least a month. I was having none of that. The hospital smelled of nightmares. The last time I had been there was when Dad had his stroke and I spent two days waiting for him to die (which sounds brutal, but we knew about the terminal cancer so swift death from a stroke seemed like a far kinder option). I wasn’t going to spend a minute longer in that place than I had to.

I forced myself back onto my feet and was home a week later. In retrospect, I shouldn’t have done that. I might have avoided some of the permanent damage if I’d stayed in. But… I couldn’t. Not that being at home was much better, in a hastily set-up bedroom in what was usually the dining room. That was where we had laid out Mum’s coffin. To me, it always smelled of formaldehyde. I managed two nights in there before I became convinced that if I stayed there I was going to die too and started dragging myself up the stairs to my own bed. I had specifically promised the doctors I wouldn’t do that, but needs must. I had thought that I’d have someone to take care of me while I got back on my feet, but… well, let’s just say that I learned a few excruciatingly hard lessons about trust after I came home from hospital. I was on my own, negotiating the house with a crutch in one hand, a cast on the other and a massive feeling of being kicked while I was down.

I healed, mostly. The facial scarring, as I’ve said, healed cleanly. The one on my knee stayed hideous, but easy enough to conceal. I never regained full strength in my left wrist, there was some permanent damage to my lower back and my neck, and I was left with involuntary eye movement and deteriorating vision after the head injury. I haven’t needed a walking stick for crash-related reasons since 2007. My confidence didn’t recover, though. I learned how alone I was. I learned a very particular kind of fear. It threw everything I had lost into sharp focus. And even now, ten years later, I can’t stand the sound of car crashes in films and TV shows. If I don’t see the crash coming and cover my ears in time, the trauma reaction kicks in and I start twitching like a fucking idiot and have to fight not to scream.

That’s quite a legacy for someone’s brief fuck-up. To this day, I do not know why it happened. I don’t know whether the other driver was high, suicidal or having a seizure at the wheel. I don’t know whether he was suspended or banned from driving. All I know is that he was male, speeding, alone in the car, and he escaped with just bruises. That’s what I got from the police and hospital staff. I don’t even know whether I should be angry for him or sorry for him. All I know is that something this person did, voluntarily or otherwise, left me with damage that will be with me for the rest of my life. Scars on my face, my leg and my psyche, and I still don’t know how I’m supposed to feel about it.

Scar 2

 

At least I could feel legitimately insulted by the compensation I was offered. Someone – his insurance company? – offered me £440 to compensate me for my medical expenses. I set the cheque on fire. £440 barely covered the amount I had to spend on getting to and from the hospital for cast removal, stitch removal, physio and god knows that else. It did nothing to cover the ongoing physio or my glasses or contact lenses. Those are costs I’ll always have to meet out of my own pocket, because someone drove his car into mine. I could have fought for more, but I was a traumatised 22 year old with no family and no-one who would support me through that process. I just couldn’t deal with the paperwork. I couldn’t handle reliving it and having the validity and severity of my injuries questioned. Dealing with the horrible, arbitrary nature of what had recently happened was enough, and if someone, somewhere was willing to price my well-being so low… fuck them.

Ten years on, I’m not entirely sure why I’m writing this. I feel the need to mark the day, almost to the minute. I need to remember what happened and how it felt, and how difficult it has been to set aside over the years. The reminder of the car crash is there every single time I look in the mirror. Facial scarring is strange. I’m incredibly lucky that it wasn’t disfiguring. It so easily could have been. But even so… it’s my face. Mine. My visual identity. And it’s got this big line down it because someone caused me to get hurt.

I choose to own it. Back in the ghost tour days I used to rub lipstick into it to make it look recent and livid, because it freaked people out. I knew it had the capacity to freak people out. When people do notice it, it’s ghoulish. I went to the release of the last Harry Potter book with my scar proudly displayed because sometimes you just have to make the joke before anyone else does (and believe me, when the scar was still easily visible I heard every fucking Harry Potter joke ever). I part my hair in line with the scar. I refuse to hide it. It’s barely visible, but I’d rather leave it available to be seen than brush my hair over it and look like I’m trying to hide it.

Bizarrely, I sometimes catch myself wishing that the scar had not faded quite so perfectly. Sometimes I wish it had stayed visible so that it didn’t look like I’d made an effort to conceal it. I haven’t, and I never did. The scar is a visual signifier for something I haven’t forgiven or forgotten, something I probably should forgive and forget but I don’t know how, because I don’t understand the event itself. If I could just be angry about it or just know that it wasn’t his fault, I could feel something fairly. Instead I feel nothing but confusion and pain, even now. I would probably have let go of the emotional pain years ago, were it not for the literal, physical pain that accompanies it. I feel the pain, it makes me angry, and all the feelings come flooding back.

I’m not sure I want to let go of the anger, anyway. Destructive and unhealthy it might be, but it’s mine. When I began to let go of the anger regarding the bereavements, what I found underneath was something much more complicated and harder to deal with. I don’t know if this would be the same. It might not be. But if it is… it’s easier to be angry. I know how to do that. I’ve mastered the art of a nice, passive rage that sits below the surface, kept at bay until I need it. Any time it starts to burn a little low, I can look in the mirror and the scar is right there to refuel it. Long, white, less visible than it was, but clear enough. A reminder of 2003 – 2005, and the last of the three events that hurt me badly and shaped the course of my life. The last of the Decade.

Scar 3

(This was taken earlier today. Ignore the facial expressions, this is what we call “resting brunch face”. It’s just that the scar was noticeable, and it prompted this post so I thought I should include it.)


After the detour…

Hello, blog. Long time no write.

I’m still here, I’m still alive, and I’ve been meaning to update for just over a year. So why haven’t I?

2014 took its toll. Well, from October 2013 onwards, really. It’s nothing I haven’t mentioned before, just the usual Dead Parents stuff. Hence not writing about it. Hence the constant desire to write about it curtailed by angst about writing about it. Am I making sense yet? Probably not. This is why I’ve been so quiet.

I was expecting the anniversaries to be something of a problem. Perhaps that was a self-fulfilling prophecy, but perhaps it had to be. As I’ve said previously, I’ve always struggled to balance the desire to move on from the grief with the necessity of making that grief mean something. If the grief means something, if their deaths were truly significant in my life, then the anniversaries had to hurt me, and the more it meant the worse the pain had to be. Self-inflicted? Partly self-inflicted? A natural consequence, but one I need to feel that I could, in theory control so I convince myself it’s self-inflicted? I have no idea. Honestly, I have absolutely no clue how much of the pain I generate myself and how much is an inevitable result of the pain of bereavement. I can analyse, I can guess, but I can’t step far enough away from myself to get a clear view.

However, while I may not be able to get enough distance from myself, I finally have enough distance from the events. At last I can start to look at that period as a whole – which I need to do in order to lay claim to what happened and turn it into something I can use and take ownership of, rather than something that controls me. But it’s something I can’t do without feeling it all over again. Essentially, over the course of 2014 I had a very quiet, gradual and protracted version of the breakdown I probably ought to have had in 2005.

This manifested as paralysis and lockdown, which is typical for me. Back in the aftermath of the bereavements/injuries I would move between periods of being apparently functional and periods of shutting the world out. During the former, it looked like I was coping. In fact it was the lockdowns that were keeping me going and allowing me to process things. Making myself look functional has always been how I’ve outrun emotions and pain.

The trouble with pain is that it’s so bloody overwhelming. I can feel my way through it, learn to understand it and eventually control it, but doing so is all-consuming. I can’t do it and have a social life. I can do it and work, because I can plough all the emotional stuff into my writing. Fictional characters make excellent receptacles for anguish, and they’re great company. Other aspects of my work, specifically the ones involving human interaction, are less easy to integrate. Putting words in the mouths of non-existent people is fine, but conversing with real ones, whether in writing or in person, is harder. They’re a lot less easy to control, and when I’m trying to manage the pain I don’t have much room left over for uncontrollable things.

Which brings me back to why I’ve been so silent here. Firstly, I’ve written plenty about the Dead Parents and the grief here. There’s nothing more to be said. Except that there’s everything still to be said, so much that if I wrote a thousand posts I could barely scratch the surface. It’s futile and/or necessary, and either way it’s overwhelming. It’s self-indulgent and therefore unjustifiable, and/or it’s helpful to other people and therefore more responsibility and consequence than I can handle just now.

I’ve meant to write, and I’ve wanted to write, and again and again I’ve thought “I must write about this”. Then I’ve opened WordPress and found that I couldn’t. This is what I do with emails, too. I know who I need to contact. I plan the content meticulously in my head, then I open Gmail and can’t touch the keys. There’s no point, it’s all been said, or it hasn’t but either way the interaction will take up more energy than I have and it will make the pain worse. I really don’t want the pain to be worse.

So that’s what’s been happening. But now there are things I need to use this blog for, and I’ve started a project elsewhere that will (I think, or at least I hope) let me balance the pain and the output in a useful way. Cryptic? Hell yes, because I haven’t decided whether I’m telling people the specifics of the new project yet. It might just be for me, for the present at least.

Time to start writing here again. I can just about deal with interaction again. I think. We’ll find out. Welcome back to the Scenic Route.


When a belief is not a belief

There will be a lot of things in this post that I’ve touched on in the past, but I’ve never explained the full extent of what’s been going on in my head over the past year.

I’ve mentioned before that it was the 10th anniversary of my mum’s death in October and will be the 10th anniversary of my dad’s in July next year. I’ve written at length about my experiences with depression and a wee bit about ADD and PTSD. I know I have a tag for Schizotypal Personality Disorder so I must have spoken about it somewhere, but I’ve never really gone into it in depth because it’s less well-known and harder to explain. But it’s a factor in what’s going on at the moment (or at least it seems to be), so… here goes. I don’t claim to be an expert on this. I’m just someone who lives with it, and I’ll try to explain what it is, what it feels like and how it’s affecting me as clearly as I can.

Schizotypal Personality Disorder is a schizophrenia spectrum disorder. It involves obsessive rumination, anhedonia, eccentric behaviour, inappropriate emotional responses, magical thinking, social withdrawal and anxiety, strange means of expression and occasional hallucinations. I remember the psychiatrist who diagnosed me, back when I was 18, explaining that as someone with StPD I would never see the simple solution to a problem if there was a complicated one available. Apparently the big difference between StPD and schizophrenia is that with StPD, you can still tell when what you’re experiencing is not reality.

Over the years I have learned how to live with and control my symptoms. Getting the obsessive rumination under control was a huge personal triumph, achieved through CBT and visualisation and relentless discipline. My means of expression changed gradually, influenced by years of blogging. By writing for an audience and reading other people’s writing, I got the hang of how other people sound. I gradually let go of my unusual patterns and word choices (though a few little things remain – read enough of my writing or listen to me talk and you might spot my obsession with patterns of three). I learned how to tell delusions and hallucinations from reality – most of the time, at least.

The difficulty – and this is the really tricky thing to explain – is that sometimes I find myself in situations where I don’t believe my beliefs. Ten years ago, when my parents died, they were the only people I truly cared about. (Failing to form close relationships outwith your immediate family is a fairly typical StPD thing.) Those events planted the seed of a rather unhelpful idea – specifically, that the people I love that much will die. That my love can bring about the death of whoever receives it. The basis for this belief seems to be that if my life were a fictional narrative, that’s what I would expect to happen next.

Now, on the one hand, I am well aware that this cannot be the case. The world just doesn’t work that way. I do not live in a novel. What happened to my parents was statistically improbable, but that makes me the victim of a misfortune, not deus ex machina or a particular stage of my journey as protagonist. My love is not some kind of deadly force.

On the other, I know it is true. I’m talking about the kind of absolute certainty with which I know my name, or that the face I see in the mirror belongs to me. It is this knowledge that makes me feel so bloody guilty about loving my husband, because if I know that my love will cause his death. So I feel guilty and selfish for putting him in danger, and I live every day with the fear that my belief will prove accurate. Every time I come home I experience intense anxiety from the moment I arrive at  our building to the moment when I am actually in the flat and have seen for myself that he’s still here, still alive, not imaginary. This is not rational or reasonable. I should be able to leave the house without becoming convinced that something bad will happen to my husband. I should be able to unlock my front door without my heart pounding in my ears. I talk myself through the rational argument every time. Usually, delusions respond to repeated dissuasion and a certain amount of CBT. This one, however, is very strong and extremely resistant to everything I throw at it. It has not diminished over time. If anything, it has grown stronger.

That’s  a big part of the reason why I’ve been so antisocial this year. I’ve skipped so many get-togethers because I just can’t manage the usual social anxiety on top of this. I’ve always been a little bit freaked out by large groups, but usually I’ve enjoyed hanging out with people on a one to one basis. Not so much this year. This year I’ve been a lot more withdrawn because my head is too noisy, and also because as this belief gathers strength, it seems safest for everyone if I don’t let myself feel too close to people.

That’s a tough one to explain to people. “Sorry, I can’t meet because I’m really busy just now” is a much easier excuse to understand than “sorry, I’m worried that being friends with me will cause you harm so I’m just not doing the interaction thing right now”. I try to explain verbally when I have the energy, but honestly, talking this through takes a lot out of me and it’s easier just to write about it and hope that the message gets through.

The reason it takes so much out of me is that I fear people’s judgement. I know there will be people who look at this and think “well, you know that belief is nonsense, why don’t you just stop giving in to it?”, missing the fact that I don’t give in to it. I fight it every single day, I win minor victories every time I succeed in doing what I want and need to do without letting this stop me – but I haven’t won the decisive battle that gets it out of my life forever yet, and that’s not for want of trying. I also know that there will be people who write me off as completely crazy because I have a schizophrenia spectrum disorder and they don’t know enough about what that means to realise that they’re not unsafe around me. And I know there will be a few who think this is just attention seeking. It’s not. Even I am not masochistic enough to want the kind of attention that anything involving the “schizo” prefix gets you.

I’m writing this partly as explanation for why my 2013 has been quieter and less sociable than previous years, and partly because I’ve shied away from talking about anything explicitly StPD-related here in the past. I write about my mental health because I feel that if someone like me can’t be “out” about it, what chance is there for people working in less accepting worlds than the arts? Avoiding the issue of StPD was beginning to feel like a betrayal of that purpose, and an act of cowardice.

So there you go. A bit of insight into my head and hopefully into StPD as an everyday thing. I don’t feel like I’ve given you an accurate picture of how powerful and terrifying these beliefs can be, but I don’t know whether I can. I’ve been searching for the words for a very long time, and finally it felt like I should just get this much down and see whether the more minute, intense stuff follows later.

Hopefully some of this makes sense to people who are not me.


The Tyranny of the Telephone

The internet can be a daunting, even terrifying place, but there are times when I’m incredibly glad to have access to it. In particular, I find it very comforting to be brought into contact with other people who share the same apparently unusual behaviours as me. For a long time I wondered whether I was the only person who was genuinely terrified of the phone. By being open about my hatred of phones online, I discovered that it was a surprisingly common fear – amongst my friends, at least.

Have I always been this way? Yes, for as long as I can remember. It was easier back in the days when I was very small and being taught to answer the phone when it rang. The deal was that I could answer provided I said “Hello, how may I help you?”, answered any direct questions and then handed the phone over to Mum or Dad. At that stage I didn’ t have to worry about actually making the calls. As I got older and was expected to have actual conversations with the people who called, or – worse – to call people myself, the anxiety began to set in.

What am I scared of? Being judged and getting things wrong, mostly. Like the writer of this article – http://freethoughtblogs.com/blaghag/2013/08/why-are-you-calling-my-texting-device/ – I don’t always find it easy to hear exactly what people are saying on the phone. I’m very sensitive to background noise, and anything with more bass than a human voice will drown out whoever I’m talking to. I also find that hearing someone’s voice when I can’t see their body language and facial expression is like reading a letter with every third word blanked out. It’s a confusing experience and I find it difficult to trust disembodied voices on the ends of phones. Unless I’m talking to someone I know, really, really well (and sometimes even then), my stupid depressive conviction that everyone hates me tries to get out of control.

However, when I was younger it was easier just to shut my anxieties up and get on with things. I could talk myself through the fear, doing a kind of rudimentary CBT. I still hated it when I called my friends and their family members answered because that interfered with the script in my head, but I could do it without having a meltdown. I was never exactly comfortable with phones, but I could deal with them and even have long conversations with people I knew well. Then, as with so many other fears of mine, the trouble really began when my parents died.

To be absolutely precise, the trouble began when Dad was dying. My mum went quickly from diagnosis to death, and for the couple of weeks that she was in hospital we barely left her. Dad and I would dash home to wash, change clothes, top up our supply of cornflakes and peppermint tea for her and then go back. When Dad got diagnosed he was at a much earlier stage, so the plan was for life to go on as normal until the need for palliative care grew more pressing. A few days after he came home from hospital, he had a stroke and ended up right back there.

When Dad and I arrived at A&E I was warned that he probably wouldn’t make it through the night. He did. Then I was warned he probably wouldn’t make it through the next 48 hours. He did. I snatched a few hours’ of sleep in some unoccupied doctors’ quarters but didn’t dare go further away than that. After day three, the doctors encouraged me to go home, get some sleep, spend a bit of time outside the hospital. After I’d been home for some sleep and a shower, I went shopping. Specifically, I went looking for the kind of yoghurts my dad liked. As I pulled into the driveway, my aunt came and told me that the hospital had phoned and it was that “come at once” call. I went tearing across the city, terrified that I might be too late.

I wasn’t. Dad would survive for another four months, but throughout that time he would not only be dying of cancer, he would be at risk of a secondary stroke which would probably kill him. Since he was partly paralysed and I couldn’t handle caring for him on my own at home, he was transferred to the hospice. I practically lived at the hospice until he died, but I still had to go home for showers, changes of clothes and occasional time off and nights in a bed rather than a chair. My home phone and mobile numbers were written in large letters on a pinboard in my dad’s room and I have never been more diligent about keeping my phone charged. Every time I left the hospice I was just waiting for my phone to ring, dreading that it would be the call telling me to come back because we were at the end – or worse, the call telling me that I could take my time because it was too late.

As it happened, my dad never had another stroke. In fact, he made an incredibly impressive recovery from the first stroke. It was truly galling to watch him battling to regain his vocabulary, his diction, use of his right hand, while at the same time watching him wasting away as the cancer took hold. (He even got as far as being able to recall most people’s names accurately, though he always confused mine and Mum’s. That was painful.) He died slowly, his body shutting down bit by bit, and I was with him throughout it. But even though I never got that call telling me he’d had a second stroke, the fear of it never left me. I learned to associate ringing phones with bad news, and that’s why my mobile lives on silent.

After Dad died I was subjected to harassing phone calls on the house phone for some considerable time. That didn’t really help with the phone fears. Upwards of five times a day, any time from morning until the small hours, a particular member of my family would call and leave long, rambling, often threatening messages on my answering machine. (In retrospect I should have reported it to the police, but it’s amazing what you don’t do when you’re newly orphaned and made promises to your parents. Or I should have changed my number, but I was hoping against hope that I wouldn’t be in that house for much longer and I would change my number when I moved. To change my number would have been an admission that I wasn’t getting out my dead parents’ house any time soon.)

So, none of these things really helped me to deal with the existing fear of phones. I have mad CBT skills, but it’s an inadequate weapon against this particular demon. When my phone rings I am convinced of the following things:

1) Someone I love is dead/dying.

2) Failing that, someone I love now hates me.

3) Failing that, I am in some kind of massive trouble with someone over something.

4) Failing all of those, the person who used to leave those message has found me again. (This one is why I NEVER answer calls from numbers I don’t know or withheld numbers. EVER. My job makes it necessary for me to have my contact details available, which means that occasional calls from unknown numbers are inevitable, but that’s why I have voicemail. If a client leaves me a voicemail I expect that they’ll leave their name and ask me to call them back. If a friend leaves me a voicemail I expect it to be an emergency, because they all know everything I’ve written in this post and that I don’t appreciate being put through the phone fear unless something is wrong. Friends who want to chat to me know to text me first so I’m expecting their call. People who call from an unknown number and don’t leave a voicemail… I HATE THEM ALL. When that happens, I get those joyful feelings of “they’ve found me, it’s all going to start again, how much do they know, have they found where I live, am I going to have to change my number/move/call the police”. And this goes on for ages, just because some people won’t leave a fucking message. Thanks! Thank you so much! I love reliving traumatic experiences just because it’s too much work to say “This is X, I’m calling about Y, please call me back.” If it’s important enough to warrant a phone call, it’s important enough to leave a message. If it’s not important enough to leave a message, why are you calling me in the first place?)

This is why I love email. And Facebook. And Twitter. And video calling on Skype. And blogging. And texting. And pretty much anything else that means I can communicate with people without phone calls. Nothing beats a face to face conversation, of course, but if that’s not an option I’d rather use pretty much any means of communication rather than the phone.

There’s more to explore here, so I will revisit this subject at some point – as always, I’ve written until I couldn’t write any more and need to step away from this topic for a bit. The external influences on my fear are pretty clear, but it would be easy to get stuck on them and not look at the root causes. There are issues here concerning control, feeling unable to communicate with people, feeling that people are incredibly difficult to understand but that I have to keep trying and trying to do so. All the things that pushed me towards theatre, essentially. Though, sadly, I don’t think that “don’t phone me, just write me a play and I’ll write you one back” will ever catch on.


My hobby happens to be gardening, for which I don’t expect to be paid.

Today I saw a show that sickened me so much that I walked out. I’ve never done that before – or at least, not for that reason. I’ve walked out of plenty of shows because they were bad and I could think of better things to be doing with my time. Anyway, the point is that I am a wee bit scunnered and feel like writing something that isn’t Fringe related.

While wandering about on Twitter I found this article: http://hwala.horror.org/wp/?page_id=158. It was written by Lisa Morton, who is something to do with the Horror Writers’ Association. Apparently she loves “all kinds of writers”, except the ones who claim to be professionals when they are, in fact, hobbyists.

I call myself a professional writer. Want to know why? Because I write stuff and people pay me for it. I don’t get paid for everything I write – this blog, for example, is written for the sheer giddy hell of it. Most of my plays are written because I need to get them out of my system, in the vague hope that at some point someone would like to produce them and maybe give me some money (which sometimes happens). No-one pays me to shoot my mouth off on Facebook and Twitter, that’s just what I do for fun. But there’s all that other writing (most of which you’ll never find because it’s not under my name) that serves to keep the HellCat in Felix.

However, my criterion is a little too unsophisticated for Ms Morton, it seems. She has provided a handy quiz with which one can establish whether one is or is not a professional writer. The aim is to answer “yes” to all of these, but you can just about squeak by with a score of 80%. Score less than that and you are nothing but a “hobbyist”.

Let’s do this thing!
1. Is your home/work place messy because that time you’d put into cleaning it is better spent writing?

I’m a chaotic, messy person and I hate cleaning. The time I would put into cleaning is better spent doing anything else. So I suppose my answer is technically “yes”, but I don’t think it’s what Ms Morton meant.

2. Do you routinely turn down evenings out with friends because you need to be home writing instead?

No, I routinely turn down evenings out with friends because I’m feeling antisocial and don’t feel like leaving the house. Deadlines are a great cover story, though.

3. Do you turn off the television in order to write?

Hahaha no. The TV (or music) keeps me company while I write. Please don’t leave me alone with the characters in my head.

4. Would you rather receive useful criticism than praise?

This is a silly question. On the one hand, I know that constructive criticism is better for me and will aid my development as an artist. But I’d rather hear that my work is awesome and needs no improvement (it would be even better if it were ever true). This is like asking whether I would rather have broccoli or Jaffa Cakes. So, er… no?

5. Do you plan vacations around writing opportunites [sic] (either research or networking potential)?

Do I plan what? I went on honeymoon once, does that count? I sure as hell didn’t plan that round research or networking, so that’s a no.

6. Would you rather be chatting about the business of writing with another writer than exchanging small talk with a good friend?

When I talk to other writers we spend a lot more time talking nonsense than discussing “the business” of writing. I’ve got a ton of ghostwriting anecdotes that I dine out on (a handful of them are even true), but they work better on a non-writing audience. So… no.

7. Have you ever taken a day job that paid less money because it would give you more time/energy/material to write?

Ghostwriting is my day job. I’m also a tour guide, but that’s my second job and I do it because it forces me to unchain myself from the keyboard from time to time, brings in a wee bit of extra cash and ghost stories are fun. So no.

8. Are you willing to give up the nice home you know you could have if you devoted that time you spend writing to a more lucrative career?

We’ve got a lovely home, thanks. So no.

9. Have you done all these things for at least five years?

Some of them yes, some of them no. I haven’t been paying my bills with writing for that long.

10. Are you willing to live knowing that you will likely never meet your ambitions, but you hold to those ambitions nonetheless?

I specialise in clinging to ambitions that are completely impossible to realise. It’s part of being emotionally masochistic. I don’t know whether it’s anything to do with being a writer. I think it’s just about being a little bit melodramatic. So yes, but again, not really in the sense that Ms Morton seems to mean.

 

So here’s my score:

YES: 2 and a half. 

NO: 7 and a half. 

RESULT: Hobbyist! 

 

Ah well. That’s me told. But you know what? I think I’m just going to go right on letting people pay me to write for them and see how long I can keep it up for. I’ll start by writing my latest reviews (unpaid) and the outline for the next novel (paid) while I watch Quantum Leap and wonder how many manuscripts written by “professionals” who could get 10/10 on this quiz have been given to me and my fellow “hobbyist” ghosts to rewrite…

 

P.S. My hobby is not actually gardening, but well done if you placed the line.